Monday, May 11, 2009

DIABETES, CELIAC, TRAINING, RINSE AND REPEAT

A MILLION WISHES FOR A CURE GALA
On May 2nd Camryn spoke at the JDRF Gala Promise Ball. It was a wonderful event that raised over $750,000 for what we think is a very important cause. Camryn spoke from a large stage about her life with diabetes and the importance of funding research. Although she had a harder time preparing for this one (in that we actually tried to get her to practice it) - she was fabulous. She was treated like a rock star and continues to love being part of working toward a cure for juvenile diabetes. She said to me, regarding her participation: "well, I am not the type to just sit around and wait". Other big news for Camryn is that she has finally conceded that she may be ready to try the Continuous Glucose Sensor. This device could substantially change her life with diabetes and is one of the key elements of the Artificial Pancreas (which is still in clinical trials). We will discuss the sensor with her endocrinologist at her next appointment. Insurance coverage is a big issue on this one - but my feeling is if she wants it she gets it - we'll figure out how

IN CELIAC NEWS: WE WENT OUT TO DINNER!!!
We were in Boston this past weekend for a memorial service and went to Legal Seafood (the Chestnut Hill location) for dinner. They have a gluten free menu and the food and service were both fantastic!! The Manager personally came to the table to tell us that they would take good care of us. All three of us had fantastic meals - the menu includes thing baked with gluten free bread crumbs, or fried in chick pea flour , salads with GF croutons, really good dinner rolls. Best GF restaurant we've been to. I am not sure if all Legal Seafood locations have got it down so well, but if you are going to be in the Boston area - I highly recommend it.

SUDBURY SPRING SPRINT TRIATHLON
This has now become my Mother's Day tradition. My first triathlon of the season. So much fun. It was a beautiful, sunny day although very, VERY windy. The wind made the bike portion a bit tough but otherwise just a fun little triathlon. The best part was that my family was there for the whole race and the way the course is set up I got to see them 5 times during the race. And best of all there was no whining or complaining or wanting to go home. They seemed to actually enjoy it. In fact they asked repeatedly how old they have to be to compete in it - probably inspired by the 13 year old who was just out of reach my whole race and ultimately beat me! (doesn't take much). This was my first and possibly my last triathlon for this season due to a pending health issue that needs tending to - so I was all about having fun, and I did. Good weather, nice people, great course, all good! My time was slightly better than last year but not as good as I had hoped - but I think it was due to the wind on the bike. No matter though, it was a great Mother's Day!